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NetLink November 2015 Inside this Issue: Decreasing PatientProvider Conflict 4 News from the NHSN Helpdesk 5 Community Corner 6 Finalized Clinical Measures PY 2017 7 Preparing for CMS 2744 Surveys 8 5-Diamond Patient Safety Program 10 KCER/FDA Alerts 11 KCER Disaster Training Materials 11 Patient Engagement Materials 11 Calendar 12 Patient’s Corner 13 FAQs from Dialysis Facilities about Healthcare Personnel (HCP) Influenza Vaccination Summary Data Reporting for Calendar Year 2016 CMS ESRD QIP For Payment Year 2018 (calendar year 2016), the Centers for Medicare and Medicaid Services (CMS) introduced a new reporting requirement to its End-Stage Renal Disease (ESRD) Quality Incentive Program (QIP): NHSN Healthcare Personnel (HCP) Influenza Vaccination Summary surveillance. Dialysis facilities that are participating in QIP will collect HCP influenza vaccination data, according to the HCP Influenza Vaccination Summary Protocol (http://www.cdc.gov/nhsn/pdfs/hps-manual/ vaccination/hps-flu-vaccine-protocol.pdf), beginning with the 2015/2016 influenza season and report a summary of those data to NHSN on or before May 15, 2016. Q: Does my dialysis facility need to report HCP influenza vaccination data to NHSN for CY2016? Your facility may be eligible for NHSN HCP influenza vaccination reporting if it satisfies both of these criteria: Your dialysis facility is Medicare-certified and has a CMS certification survey date on or before January 1, 2016 At least one employee, licensed independent practitioner, or adult student/trainee/volunteer (as defined in the HCP Influenza Vaccination Summary Protocol) will work on-site at your dialysis facility for at least one day between October 1, 2015 and March 31, 2016 Please see the CMS ESRD QIP rule (http://esrdnetwork.org/wp-content/ uploads/CY2015PY2017_Final_Rule.pdf) for more detailed information. Continued on page 2... Page 2 NetLink November 2015 ...Continued from page 1 Q: The hospital we are affiliated with already reports our dialysis facility’s HCP influenza vaccination data; does our dialysis facility still need to report this data to NHSN? If your dialysis facility is Medicare-certified, regardless of whether you share a CMS Certification Number (CCN) with an affiliated hospital, your facility needs to report influenza vaccination summary data for your HCP separately in NHSN. Beginning with the 2015-2016 influenza season, the hospital should no longer report influenza vaccination data for HCP working in your dialysis facility unless those HCP also work in other inpatient or outpatient departments of the hospital that are covered by CMS reporting requirements for hospitals. Q: My dialysis facility is already enrolled in NHSN for Dialysis Event Surveillance. What do I need to do in NHSN to be prepared to report HCP data? If your facility provides in-center hemodialysis and is already enrolled in NHSN, your facility’s NHSN Healthcare Personnel Safety (HPS) Component needs to be activated. This step must be completed before HCP influenza vaccination data can be reported. If your facility is part of a large dialysis organization, your corporation may have already activated the HPS Component for your facility (you can check on the “Facility Info” page). If your facility has not yet activated the HPS Component, please have a user with administrator rights follow these instructions (http://www.cdc.gov/nhsn/ pdfs/dialysis/how-dialysis-facility-adds-hps-component.pdf). Q: My peritoneal dialysis and/or home hemodialysis facility is not enrolled in NHSN. What do I need to do to be prepared to report HCP data? If your facility shares a CCN with an in-center outpatient hemodialysis facility that is already enrolled in NHSN, do not enroll your facility in NHSN separately. Instead, report your HCP influenza vaccination data along with the in-center outpatient hemodialysis facility’s HCP influenza vaccination data according to the HCP Influenza Vaccination Summary Protocol (http:// www.cdc.gov/nhsn/pdfs/hps-manual/vaccination/hps-flu-vaccine-protocol.pdf). If your facility does not share a CCN with any in-center outpatient hemodialysis facility, then enroll your facility in NHSN and activate the HPS Component. Please contact the NHSN Helpdesk for enrollment instructions (nhsn@cdc.gov with a subject line ‘Dialysis’). Q: How do I enter HCP influenza vaccination summary data after I have activated the HPS Component? 1. Login: Upon login to NHSN, users with access to multiple components will see the NHSN Landing Page. Select “Healthcare Personnel Safety” from the component dropdown menu to access the Healthcare Personnel Safety Component Home Page. 2. Add a Monthly Reporting Plan: A monthly reporting plan needs to be entered before HCP influenza vaccination summary data can be reported. To enter a plan, from the HPS Component Home Page select “Add” under “Reporting Plan” in the left-hand navigation bar. Enter any month and year between July 2015 and June 2016 in the dropdown boxes and check the box marked “Influenza Vaccination Summary,” then click the “Save” button. You only need to enter a single monthly reporting plan for the entire influenza season. Continued on page 3... Page 3 NetLink November 2015 ...Continued from page 2 3. Report: According to the HCP Influenza Vaccination Summary Protocol (http://www.cdc.gov/ nhsn/pdfs/hps-manual/vaccination/hps-flu-vaccine-protocol.pdf) collect data for the 2015/2016 influenza season. After a monthly reporting plan is added, you may report HCP influenza vaccination summary data by selecting “Add” under “Flu Summary” in the left-hand navigation bar and clicking on “Continue.” When the summary form appears, select “2015/2016” in the dropdown box labeled “Flu Season,” enter your data, and click the “Save” button. Report data to NHSN on or before May 15, 2016. Q: Where can I get more information about reporting HCP influenza vaccination summary data to NHSN? Please see the Surveillance for Dialysis Healthcare Personnel Vaccination website (http:// www.cdc.gov/nhsn/dialysis/hcp-vaccination/index.html) for the reporting protocol, tables of instructions, and training. If you have questions about HCP influenza vaccination reporting, please contact the NHSN Helpdesk at nhsn@cdc.gov and include “HCP Flu Summary– Dialysis” in the subject line of your e-mail. If you have non-NHSN questions about CMS ESRD QIP, e-mail CMS at ESRDQIP@cms.hhs.gov. Alliant Quality Kidney Collaborative (AQKC) HAI Learning and Action Network held a webinar on 9/23/2015 featuring presenters and experts from the CDC on this NEW QIP requirement - reporting HCP influenza vaccination data to NHSN. Go to http://www.aqkc.org/content/national-healthcare-safety-network to access the webinar video and slides. Page 4 NetLink November 2015 Decreasing Patient-Provider Conflict ESRD Network 14 receives many calls from patients wanting to file a grievance against his/her dialysis facility. It is customary for Network 14 to also ask the grievant, “Is your facility aware of your concerns?” Sometimes the grievant will say “No”, but more often he/she will say “Yes.” This question is not asked to deter the grievant from filing a grievance, but to gauge what may have occurred to address the grievant’ s concerns prior to contacting Network 14. As a dialysis facility, when you are notified that a patient and/or caregiver has a concern regarding care that is received, what steps do you take? The Patient Services Department would like to provide a solution to increasing positive ways to resolving conflicts at the facility level. The Decreasing Dialysis Patient-Provider Conflict (DPC) training kit was created to provide resources to dialysis professionals to better understand, respond to, and decrease conflict. The DPC training consists of nine modules that work to perpetuate the goals of your dialysis company. This is done by providing staff with the skills and approaches needed to provide patient care with a patient-centered approach. The kit includes a provider manual, DPC brochures, DPC Pocket Guides, DPC Conflict Interactive Training Program (that provides a certificate of completion), and DPC Conflict Resolution Resources for Dialysis Professionals Program Documents. All Medicare-certified facilities receive or have received a copy of the DPC from the ESRD Network. Conflict is inevitable, but the response to conflict can also be patient-centered and focused. Network 14 highly recommends that your facility complete this training on a routine basis in order to reinforce additional ways of resolving conflict and improving the quality of care of all patients in the unit. If your facility does not have a DPC training kit, please contact Network 14. The relationship between the patient and the provider is essential to good dialysis care. Our vision is that all dialysis patients have the best collaborative patient and provider relationship possible. DPC training can be the first step. Like us on Facebook. To access go to www.facebook.com and log in to your account. Look under “liked pages,” and type in ESRD Network of Texas. Follow us on Twitter @ESRDNetworkofTX NHSN Enrollment The link http://www.cdc.gov/nhsn/enrollment/index.html provides a stepby-step guide for successful completion of enrollment into NHSN. Page 5 NetLink November 2015 News from the NHSN Helpdesk How to Improve Positive Blood Culture Surveillance in Your Facility Your facility is responsible for reporting positive blood cultures among your in-center hemodialysis outpatients. This includes positive blood cultures from specimens that were collected in any outpatient setting or on the day of or on the day after a hospital admission. Therefore, the Dialysis Event form prompts you to answer the following question when reporting a positive blood culture: Q1: Other than the dialysis clinic, where could my hemodialysis outpatient have a positive blood culture that my facility is responsible for reporting? · Hospital (on the day of or the day following admission) or E.D. – o Including the emergency department (E.D.) or blood specimens collected on the day of or the day after a hospital admission · Other location – o Other outpatient locations, such as a physician’s office or a nursing home Q2: How can I improve my facility’s surveillance for positive blood cultures? · Follow up on every hospitalization for every patient. o Ask your patients if they went to the hospital since their last treatment. o Request hospital microbiology lab results that include pathogen and susceptibility information. o Develop communication strategies with infection preventionists and other staff at local hospitals. o Investigate opportunities to share the electronic medical record system with local hospitals. · · Collect blood samples for culture whenever a bloodstream infection is suspected and before antimicrobials are administered. Remember, a positive blood culture should be reported regardless of whether or not a true infection is suspected or whether the infection is thought to be related to hemodialysis. Page 6 NetLink November 2015 The Immunization Safety Office of the Centers for Disease Control (CDC) is pleased to announce the launch of its redesigned and improved website. The site includes new and updated content and resources and was designed to provide a better user experience on all types of devices. To access the new website, go to http://www.cdc.gov/vaccinesafety/index.html. ASN Kidney Week 2015 Annual Meeting November 3-8, 2015, San Diego Convention Center, San Diego, CA For more information, visit: http://esrdncc.org/event/asn-kidney-week-2015-annual-meeting/ North Texas Chapter of NANT 16th Annual Symposium Continuing the Odyssey of Professional Growth Sunday, November 15, 2015 Sheraton Arlington Hotel 1500 Convention Center Drive Arlington, Texas 76011 817-261-8200 For more information contact: Charlie Johnson, CHT President and Sec/Treasurer, 972-496-5727, chuckhankj@verizon.net The ESRD Network 14 NetLink is created and published under CMS contract number: HHSM-500-2013-NW014C End Stage Renal Disease Network of Texas, Inc. (aka: ESRD Network 14) 4040 McEwen Road, Suite 350 * Dallas, Texas * 75244 www.esrdnetwork.org * info@nw14.esrd.net November 2015 NetLink Page 7 Finalized PY 2017 Clinical Measure Standardized Readmission Ratio Measure Description Number of observed and unplanned hospital readmissions Risk-adjusted standardized hospital readmissions ratio of the number of observed unplanned readmissions to the number of expected unplanned readmissions. Standardized Readmission Ratio Lower rate desired Numerator Denominator Facilities with fewer than 11 index hospital discharges are not eligible for the measure. Index hospital discharges that: 1. End in death 2. Result in a patient dying within 30 days with no readmission 3. Are against medical advice 4. Include a primary diagnosis for certain types of cancer, mental health conditions or rehabilitation 5. Occur after a patient’s 12th admission in the calendar year 6. Are from a PPS-exempt cancer hospital 7. Result in a transfer to another hospital on the same day The expected number of unplanned readmissions in each facility, which is derived from a model that accounts for patient characteristics and the discharging acute care hospitals involved. Minimum Claims 1. 2. 1. Hospitalizations are counted as events in the numerator if they (a) occurred within 30 days of a hospital discharge; and (b) are not considered a “planned” readmission. 2. Additional information about the measure can be found in the SRR Measure Methodology Report posted at [http://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment- Instruments/ESRDQIP/061_TechnicalSpecifications.html]. Medicare Claims REMIS, CROWNWeb, and other CMS ESRD administrative data Data Source(s) Additional Information Page 8 NetLink November 2015 CMS-2744 Are you ready for the Annual Survey? It’s almost time for the 2015 CMS-2744 Annual Survey. Are you ready? Is your facility and patient data in CROWNWeb up-to-date and accurate? The things your facility should do to be ready to complete the CMS-2744 and ensure your data is as accurate as possible: Gain access to CROWNWeb. Verify your PART. Enter the Misc. Info data for your patients on the patients’ attributes pages. Run your Patient Roster Report. Request your data discrepancy reports from the Network. Misaligned, Missing, and Incomplete Treatments and Training Reports CROWNWeb Inaccurate Admit Reason Report CROWNWeb Access All Medicare-certified dialysis facilities must have access to and use CROWNWeb. It is the only way to complete the mandatory CMS-2744 Annual Survey. CMS mandates that facilities have at minimum TWO QIMS accounts (Security Official and End User Manager), through which you can access CROWNWeb. The Network encourages each facility to have more than two users so that the CMS2744 can still be completed in a timely manner in the event of expected and unexpected losses of personnel. PART Your PART should be verified every month by the eighth of the month. You must verify every patient on the PART, including your transient and discharged patients. Misc Info The Misc Info data is entered on the Patient Attributes Page in CROWNWeb. It is located in the Misc Info box at the bottom of the screen and includes Citizenship, Medicare Enrollment, Current Employment, School, and Voc Rehab statuses. Please be aware that low Voc Rehab activity may result in your facility participating in a Vocational Rehabilitation Improvement Plan. Network 14 encourages you to enter this information now. For instructions on how to enter the miscellaneous information on the patient attributes page, please see the “Editing Patient Attributes Guide” available on the Network 14 CROWNWeb page at http://esrdnetwork.org/professionals/qip/crownweb/. Continued on page 9... Page 9 NetLink November 2015 ...Continued from page 8 Patient Roster Report The “Patient Roster Report” allows users to run and print a report that includes all patients present at the selected facility within the user’s scope as of a specific date or date range. It will include all patient records admitted to the facility within the date range, even if the patients have already been discharged. This will allow you to find any patients that may have been inadvertently discharged from your facility or discover that some patients were never admitted. Data Discrepancy Reports These reports are generated and disseminated by the Network on weekly or monthly bases. They provide the UPIs of patients whose records do not follow the CROWNWeb Business Rules and may cause issues on your CMS-2744. For details on some of these reports, please see the May 2015 issue of the Network’s NetLink, available at http://esrdnetwork.org/our-network/newsletters/. Please contact the Information Management Department to request these reports outside of the normal distribution schedules. These preparation tasks should be done by all Network 14 facilities, whether they are part of a Batch Submitting Organization (BSO) or not. (BSOs are: DaVita, FMC, DCI, and NRAA.) If you have questions about editing the attributes page, you can contact the Network 14 Information Management Department at 972-503-3215 (ext. 322, 326, 318, 320, or 312) or crownweb@nw14.esrd.net. DO NOT EMAIL any patient-specific information (name, date of birth, Social Security Number, etc.) to the Network 14 office. ESRD Network 14 announces that Nephrology Today & Tomorrow 2015 will not be held. We hope to see everyone in 2016! Page 10 NetLink November 2015 Network 14’s 5-Diamond Patient Safety Program 5 DIAMOND STATUS 1 DaVita Facility in El Paso Ameri-Tech Kidney Center Bedford Christus Children’s Kidney Center Cielo Vista Dialysis FMC Austin South FMC Greenway Kidney Center Liberty Dialysis Bryan NNA Marble Falls Plaza Drive Dialysis RCG Center Dialysis Reeves County Hospital Dialysis Renal Center of Frisco Renal Center of Lewisville Renal Center of Nederland Renal Center of Orange Satellite Dialysis Kyle Satellite Dialysis Round Rock Satellite Dialysis Southwood Satellite Healthcare Metric Satellite Healthcare Mueller Scott & White Artificial Kidney Unit Stafford Dialysis Texas Children’s Hospital Dialysis University Dialysis West USRC Delta Dialysis USRC Mid Valley Weslaco Dialysis USRC Rio Grande Dialysis UTSW Dallas Dialysis Wilbarger General Hospital Dialysis of Vernon 4 DIAMOND STATUS Angelo Kidney Connection Satellite Healthcare South Austin 3 DIAMOND STATUS Dialysis Services of West Texas Global Dialysis Plus 1 Renal Ventures Facility in Dallas Renal Center of Plano University Dialysis South 2 DIAMOND STATUS 1 Independent Facility in Houston DSI Bryan Dialysis FMC West Seguin 1 Renal Ventures Facility in Dallas NRI El Paso East Renal Care Group Alice South Austin Dialysis USRC Friendswood Dialysis 1 DIAMOND STATUS Childress Regional Medical Center Dialysis Dialysis Services of Allen 1 DSI Facility in El Paso 1 DSI Facility in Laredo FMC Dialysis Services of Waxahachie Scott & White Killeen Dialysis West Shannon Dialysis Center 1 Independent Facility in Brady SNG Renal Solutions Dialysis Center SNG Sandcastle Dialysis Page 11 NetLink November 2015 KCER and FDA Alerts and Recalls The ESRD Network of Texas, Inc. is notified by both the Kidney Community Emergency Response (KCER) and the Federal Drug Administration (FDA) when there is a product alert or recall. You can access information concerning recalls and alerts from our website at http://esrdnetwork.org/our-network/news under Special Alerts and Recalls. KCER Emergency Preparedness Resources KCER has emergency preparedness training modules for dialysis facilities, pandemic planning, and personal preparedness available. Slides and training scripts are also available on the ESRD Network 14 website at http://esrdnetwork.org/disaster-planning/. The best way to find yourself is to lose yourself in the service of others. - Mohandas Gandhi PATIENT ENGAGEMENT MATERIALS FOR NOVEMBER 2015 Materials for the Patient Engagement Calendar for the month of November 2015 can be located on our website at http://esrdnetwork.org/patients-families/pfcc/. www.esrdnetwork.org Family-Centered Care Patients and Families Patient Engagement and Patient-and Page 12 NetLink November 2015 November 2015 Sun 1 Mon 2 Tue 3 Wed 4 Thu 5 Fri 6 Sat 7 AQKC CW Report Cards released 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 EMResource and PART updates due Network 14 office closed 29 30 Dec 1 September clinical month closure HAI focus facility CDC audits are due into NHSN by 12/1 Page 13 NetLink November 2015 Patient’s Corner Written for patients The National Kidney Foundation has patient education, tips, recipes, and a lot more available on its website at https://www.kidney.org/. Like us on Facebook. To access go to www.facebook.com and log in to your account. Look under “liked pages,” and type in ESRD Network of Texas. Follow us on Twitter @ESRDNetworkofTX 2015 Patient Engagement Calendar Each month a new educational topic is available for Texas ESRD patients. November’s topic is “Take Care of Your Emotional Health.” If you have not received your education flyer for November, ask your social worker for a copy, or these materials can be located on the ESRD Network 14 website at http://esrdnetwork.org/patientsfamilies/pfcc/ (www.esrdnetwork.org Patients and Families Patient Engagement and Patient-and Family-Centered Care). To contact the Network for assistance or to file a grievance: Patient Toll-free Number: 1-877-886-4435 (patients only please) Facility staff: 972-503-3215 Email: info@nw14.esrd.net Facility staff: Post both the English and Spanish pages by the patients’ scales, as well as near the sink that the patients use to wash their accesses, and in the lobby/waiting room. Page 14 NetLink November 2015 The DPC Education Center is a great resource for dialysis patients and their families. For more information, go to the DPC website at http://dpcedcenter.org/. AAKP HealthLine—Upcoming Webinar! Eating Healthy for Thanksgiving! Date: November 18, 2015 Time: 7:00 p.m. - 8:00 p.m. ET Speakers: Patricia Obayashi, MS, RD, CDE and Patient Speaker Register at https://attendee.gotowebinar.com/register/4854943440394623233 Dialysis Patient Resource Are you interested in RESEARCH about dialysis? POLICY issues about insurance or access to care? The latest news on TRANSPLANTATION? If so, Dialysis Patient Citizens (DPC) can help you stay informed! The DPC Education Center is dedicated to improving kidney patients’ quality of life and reducing the occurrence of ESRD through education and by developing awareness of dialysis and kidney disease issues, improving the partnership between patients and caregivers, and developing favorable public policy solutions. For the most up-to-date information, visit the DPC website: Research, innovation and care quality news: http://dialysispatients.org/advocacy/research-innovation-quality Policy and advocacy news: http://dialysispatients.org/advocacy/key-issues Treatment options: http://dialysispatients.org/advocacy/key-issues/treatment-options Transplantation: http://dialysispatients.org/advocacy/transplantation Page 15 NetLink November 2015 To enroll by phone: 1-800-MEDICARE (6334227) To enroll online: Medicare Part D: Open Enrollment Period http://www.medicare.gov/signup-change-plans/get-drugcoverage/get-drugcoverage.html Other Resources: Social Security-help with medication coverage 1-800-772-1213 Medicare plan finder: https://www.medicare.gov/ find-a-plan/questions/ home.aspx The open enrollment for Medicare’s Part D prescription coverage plan is here. This is the time for you to look over your current medications and choose a Part D plan that’s right for you! Your Medicare health or prescription drug plan can change how much it costs and what it covers each year. Even if your plan’s cost and coverage stay the same, your health and finances may have changed. Review your plan each year to make sure it will still meet your needs. If you are satisfied with your current coverage, you don’t need to change plans. Below are some common medications you need to look for in your plan. Dates to Remember: OPEN ENROLLMENT October 15 through December 7, 2015 NEW COVERAGE BEGINS January 1, 2016 Pre-Transplant Common Medications: Dialysis Medications: Valcyte/ Renvela Valgancyclovir Sensipar Nystatin liquid Phoslo Mycelex Fosrenol (clotrimazole) Post-Transplant Medications: To file a grievance, contact Network 14 at: Phone - 1-877886-4435; Fax - 972-503-3219; Email - info@nw14.esrd.net; Mail - 4040 McEwen Rd Suite 350, Dallas, TX 75244; Website www.esrdnetwork.org Be sure your Medicare Part D plan is under $35 a month for Kidney Health Care to cover your Medicare Part D prescription plan. Also remember to let your social worker know what plan you are on or if you change plans! DO NOT include your antirejection medications as you review Medicare Part D plans for 2016. If you change plans, let your transplant social worker know or call Kidney Health Care at 1-800-222-3986. Page 16 NetLink November 2015 You can prepare for an influenza pandemic now. You should know both the magnitude of what can happen during a pandemic outbreak and what actions you can take to help lessen the impact of an influenza pandemic on you and your family. This checklist will help you gather the information and resources you may need in case of a flu pandemic. During a Pandemic Limit the Spread of Germs and Prevent Infection Avoid close contact with people who are sick. When you are sick, keep your distance from others to protect them from getting sick too. If possible, stay home from work, school, and errands when you are sick. You will help prevent others from catching your illness. Cover your mouth and nose with a tissue when coughing or sneezing. It may prevent those around you from getting sick. Washing your hands often will help protect you from germs. Avoid touching your eyes, nose or mouth. Germs are often spread when a person touches something that is contaminated with germs and then touches his or her eyes, nose, or mouth. Practice other good health habits. Get plenty of sleep, be physically active, manage your stress, drink plenty of fluids, and eat nutritious food. (ready.gov/pandemic) Additional Resources Ready.gov http://www.ready.gov/pandemic CDC http://www.cdc.gov/flu/keyfacts.htm American Public Health Association http://www.getreadyforflu.org/facts/PandemicFluFAQs.pdf American Red Cross http://www.redcross.org/images/MEDIA_CustomProductCatalog/m4340142_TakingCareFlu.pdf The Flu Season is Coming! Stopping the FLU Is up to YOU! FLU FACTS October to November is the best time to get a flu shot, but you can get one after that too How do I know if it’s the flu, or just a cold? Symptoms Flu Rarely Occurs Productive cough High fever is common Stuffy nose Common Not common Shots are given at no cost to Medicare clients Sore throat Common Not common Headache Rarely occurs Common Muscle aches Mild Common, often severe The flu shot cannot cause the flu Tiredness/weakness (fatigue) Exhaustion Uncommon Severe, lasting up to 3 weeks Never Noticeable, early onset Onset Gradual Sudden ESRD patients cannot take the nasal form of the flu shot Fever Cold Cough Dry, non-productive cough Prevention Tips Wash your hands often with soap and warm water Cover your nose and mouth with a tissue when you cough or sneeze, do not use your hands Stay home if you have a fever and avoid contact with others Be sure to call your dialysis center to tell them you are sick, they can answer any questions you may have! To file a grievance contact Network 14 at: Phone: 1-877-886-4435* Fax: 972-503-3219*Email:info@nw14.esrd.net Address: 4040 McEwen Rd, Suite 350, Dallas, TX 75244 Website: www.esrdnetwork.org. Page 18 November 2015 NetLink Care Partners: Taking an Active Role Almost 40% of all adult Americans are family care partners for a loved one, according to the Caregiver Action Network. In November, we celebrate National Family Caregivers Month to recognize the support provided by family care partners across the country. Care partners can also be anyone who supports someone who is ill or disabled in being as healthy, active, and independent as possible. People with chronic illnesses face all kinds of challenges. Care partners can help by being the “connecting thread” that leads them through the healthcare maze. They can also support a person’s health and wellness goals. As a care partner for someone on dialysis, you can help improve his or her health and well-being in many ways. You could help your loved one better understand his or her illness. You could also support your loved one in being an active part of his or her healthcare team. Helping the patient come up with questions to bring to the doctor and dialysis care team is a way to do this. You may also want to ask the care team how you can help your loved one follow his or her care plan. Go with him or her to medical appointments, encourage attendance at dialysis care plan meetings, and offer to take notes. All of your efforts and support can help the patient live a happier, healthier life. It’s important to also remember to take care of yourself. Being a care partner can be demanding at times, especially if you work full-time or have other family members that you take care of. As Megan says on page 18, ask for help when you need it. Care partners need care, too! This article has been provided by the ESRD National Coordinating Center (NCC). 1979 Marcus Avenue, Suite 105 · Lake Success, NY 11042-1072 Phone: 516-209-5253 · Fax: 516-326-7805 · ncc@ncc.esrd.net www.esrdncc.org · www.kcercoalition.com Page 19 November 2015 NetLink Megan: You Are Not Alone Megan married her husband, Roy, in 2009. Roy had high blood pressure for years, but he took his medications. He was an athlete who took care of his body. All of this changed on their daughter’s first birthday in 2011. Roy became ill and was admitted to a hospital. He was diagnosed with pancreatitis. Tests showed that his kidneys had stopped working. Roy started peritoneal dialysis and was listed on the transplant waiting list. He was stable, but still very sick. Both Roy and Megan found the challenge of managing Roy’s condition while still caring for their family stressful. “I was always worried and felt like I was parenting him, along with all the kids,” Megan said. “We were trying to [protect] the kids from how sick he was. [I knew] he was going to be okay, but there’s still a huge loss,” she said. “For better or for worse, in sickness and in health—it just came a little earlier than we expected.” Megan is a social worker. She found that her training helped her find a way that she and Roy could each be respectful of the other’s needs. It also helped her to see different perspectives and to let people know when she needed support. After a year and a half on dialysis, Roy received a living donor transplant from Megan’s brother-in-law. Megan is grateful for the support that her family received throughout the process of transplantation. She also wants to share with other care partners that it’s important to take care of yourself as well as your loved one. “Ask for help if you need it,” she said. “Try to identify somebody who can be a sounding board on days that are hard. For every person who’s on dialysis, there’s someone who’s supporting them, and [that person] needs care, too.” This publication was developed under Contract Number HHSM-500-2013-NW002C, titled “End Stage Renal Disease National Coordinating Center (ESRD NCC)”, sponsored by the Centers for Medicare & Medicaid Services (CMS), Department of Health and Human Services. The contents presented do not necessarily reflect CMS policy. 1979 Marcus Avenue, Suite 105 · Lake Success, NY 11042-1072 Phone: 516-209-5253 · Fax: 516-326-7805 · ncc@ncc.esrd.net www.esrdncc.org · www.kcercoalition.com Página 20 NetLink Noviembre 2015 Rincón del paciente Escrito por pacientes La Fundación Nacional del Riñón (NKF) tiene educación para el paciente, sugerencias, recetas y mucho más. Para acceder esta información, consulta https:// www.kidney.org. Diga que le agrada nuestro sitio (Like) en Facebook ¡¡¡La Red de ESRD de Texas ha entrado al mundo de los Medios Sociales!!! Diga que le agrada nuestro sitio (Like) en Facebook https://www.facebook.com/pages/ESRD-Network-of-Texas/415497655222823 Calendario de Participación del Paciente para 2015 Cada mes hay un nuevo tema educativo disponible para los pacientes de ESRD de Texas. El tema de Noviembre es "cuide su salad emocional”. Si todavía no ha recibido su volante educativo de Noviembre, pida una copia a su trabajador social o puede encontrar estos materiales en el sitio web de Network 14 en http://esrdnetwork.org/ patients-families/pfcc/. Para comunicarse con la Red y pedir ayuda o presentar una queja: Número de Teléfono Gratuito para Pacientes: 1-877-886-4435 (solamente pacientes por favor) Personal de las Instalaciones: 972-503-3215 Correo electrónico: info@nw14.esrd.net Instrucciones al Personal de las Instalaciones- cuelgue las paginas en inglés y español cerca de las basculas de los pacientes y el fregadero que usan los pacientes para lavar sus accesos y en el vestíbulo/sala de espera. Página 21 NetLink Noviembre 2015 El Centro de Educación de DPC El Centro de Educación de DPC es un magnífico recurso para los pacientes de diálisis y sus familias. Si desea obtener más información, visite el sitio de DPC en http:// dpcedcenter.org/. AAKP HealthLine ¡Próximo webinar! ¡Comer saludable en el Día de Acción de Gracias! Fecha: 18 de noviembre de 2015 Hora: 7:00 p. m. a 8:00 p. m., hora del Este Conferencistas: Patricia Obayashi, MS, RD, CDE y Conferencista para Pacientes Inscríbase en https://attendee.gotowebinar.com/register/4854943440394623233 Recursos de Pacientes de Diálisis ¿Está usted interesado en la investigación acerca de la diálisis? ¿Cuestiones de política sobre el seguro o el acceso a la atención? ¿Las últimas noticias sobre el trasplante? Si es así, Pacientes Ciudadanos de Diálisis (DPC) puede ayudarle a mantenerse informado! El Centro de Educación DPC se dedica a mejorar la calidad de vida de los pacientes renales y la reducción de la incidencia de enfermedad renal terminal a través de la educación y el desarrollo de conciencia de los problemas de diálisis y la enfermedad renal, al mejora de la colaboración entre pacientes y cuidadores, y el desarrollo de soluciones de políticas públicas favorables. Para más información, visite el sitio web DPC: · Investigación, noticias de calidad innovación y cuidado: http://dialysispatients.org/Advocacy/Research-Innovation-Quality · Política y noticias de la promoción: http://dialysispatients.org/Advocacy/Key-issues · Opciones de tratamiento: http://dialysispatients.org/Advocacy/Key-issues/treatment-options · Trasplante: http://dialysispatients.org/Advocacy/Transplantation Pagina 22 NetLink Noviembre 2015 Para inscribirse por teléfono: 1-800-MEDICARE (633-4227) Para inscribirse en línea: http://www.medicare.gov/signup-change-plans/get-drugcoverage/get-drugcoverage.html Otros recursos: Ayuda del Seguro Social con cobertura de medicamentos 1-800-772-1213 Buscador de planes de Medicare: https:// www.medicare.gov/find-aplan/questions/home.aspx Medicare Part D: Periodo de inscripción abierta La inscripción abierta para el plan de cobertura de prescripción de Medicare Part D se está acercando rápidamente. ¡Este es el momento para revisar sus medicamentos actuales y elegir un plan Part D adecuado para usted! El costo y obertura de su plan de salud o de medicamentos Medicare puede cambiar cada año. Incluso si el costo y la cobertura de su plan no cambia, es posible que su salud y sus finanzas hayan cambiado. Revise su plan cada año para asegurarse de que satisfaga sus necesidades. Si usted está satisfecho con su cobertura actual, no tiene que cambiar de plan. A continuación se muestran algunos de los medicamentos Fechas para recordar: comunes que debe buscar en su plan. Medicamentos comunes de De el 15 de octubre hasta el diálisis: 7 de diciembre de 2015 Renvela LA NUEVA COBERTURA Sensipar Phoslo COMIENZA Fosrenol El 1 de enero de 2016 INSCRIPCIÓN ABIERTA Si tiene alguna queja, contacte a Network 14 al: 1-877-886-4435 Fax - 972-503-3219 Correo electrónico: info@nw14.esrd.net. 4040 McEwen Rd Suite 350, Dallas, TX 75244 www.esrdnetwork.org Medicamentos para pretrasplante: Valcyte/ Valgancyclovir Líquido de nistatina Mycelex (clotrimazol) Medicamentos para posttrasplante: Asegúrese de que su plan de Medicare Part D sea menos de $35 al mes para que el Programa de Salud Renal cubra su plan de medicamentos con receta de Medicare Part D. ¡También infórmele a su trabajador social qué plan tiene o si cambia de plan! NO incluya los medicamentos antirechazo mientras revisa los planes Medicare Part D para el año 2016. Si cambia de planes, infórmele a su trabajador social de trasplante o llame al Programa de Salud Renal (Kidney Health Care) al 1-800-222-3986. Pagina 23 NetLink Noviembre 2015 Puede prepararse para una pandemia de influenza (gripe) hoy. Debe conocer la magnitud de lo que puede suceder durante un brote pandémico y qué medidas puede adoptar para ayudar a mitigar el efecto que una pandemia de influenza (gripe) puede tener en usted y su familia. Esta lista de verificación lo ayudará a recopilar la información y los recursos que puede necesitar en caso de una pandemia de influenza (gripe). Durante Limite la transmisión de gérmenes y prevenga infecciones Evite el contacto cercano con personas enfermas. Si está enfermo, mantenga distancia con las demás personas para evitar que se enfermen también. De ser posible, quédese en su hogar y no vaya a trabajar, a la escuela ni haga diligencias si está enfermo. Ayudará a evitar que otras personas se contagien. Cúbrase la boca y la nariz con un pañuelo cuando tosa o estornude. Esto puede evitar que las personas que lo rodean se enfermen. Lavarse las manos con frecuencia lo ayudará a protegerse de los gérmenes. Evite tocarse los ojos, la nariz o la boca. En general, los gérmenes se transmiten cuando una persona toca algo contaminado con gérmenes y, luego, se toca los ojos, la nariz o la boca. Emplee otros buenos hábitos de salud. Duerma bastante, permanezca físicamente activo, maneje el estrés, beba mucho líquido y consuma alimentos nutritivos. (ready.gov.es.pandemia) Recursos Adicionales Ready.gov - Pandemia http://www.ready.gov/es/pandemia CDC- Datos clave sobre la influenza y la vacuna contra la influenza http://espanol.cdc.gov/enes/flu/keyfacts.htm American Public Health Association -La gripe pandémica y la gripe estacional http://www.getreadyforflu.org/facts/FluFAQsSP.pdf American Red Cross-El cuidado de personas con gripe http://www.redcross.org/images/MEDIA_CustomProductCatalog/m4340145_TakingCareFlu_SP.pdf Factos de Influenza De Octubre a Noviembre es el mejor tiempo para obtener la vacuna de influenza, pero puede obtener una después también Vacunas se dan sin costo a clientes de Medicare La vacuna de influenza NO causa la influenza Pacientes con falla de riñones NO pueden tomar La Temporada de Influenza Esta Cerca! Deteniendo la influenza depende de USTED! Como se si es la influenza o solamente un resfriado? Sintomas Resfriado Influenza Fiebre Raro Fiebre Alta es común Tos Tos con flema Tos seca, sin flema Nariz mormada Común No es común Dolor de garganta Común No es común Dolor de la cabeza Raro Común Dolores musculares Leve Común, y muchas veces grave Fatiga No es común Nunca Grave, durando hasta tres semanas Noticiable, empieza temprano Inicio Gradual De repente Cansancio/Debilidad Consejos de prevención Lave sus manos seguido con jabón y agua caliente Cubra su nariz y boca con una toallita cuando tosa o destornude, no usa las manos Quédese en casa si tiene fiebre y evite contacto con otros Asegure llamar a su centro de diálisis para informales que esta enfermo, ellos pueden contestan cual quien preguntas que tiene! Si tiene alguna queja contacte Network 14: Teléfono: 1-877-886-4435* Fax: 972-503-3219* Correo electrónico: info@nw14.esrd.net Dirección: 4040 McEwen Rd, Suite 350, Dallas, TX 75244 Website: www.esrdnetwork.org. Página 25 NetLink Noviembre 2015 Participantes en el cuidado: cómo tener un papel activo Casi 40% de todos los estadounidenses adultos son participantes en el cuidado de un ser querido de acuerdo con Careciera Actinon Network. En noviembre celebramos el Mes Nacional de las Personas que Cuidan de un Familiar, para reconocer el apoyo proporcionado por los participantes en el cuidado de un familiar en todo el país. Los participantes en el cuidado también se refiere a cualquier persona que apoye a alguien que está enfermo o discapacitado para que pueda estar lo más sano, activo e independiente posible. Las personas con enfermedades crónicas enfrentan toda clase de desafíos. Los participantes en el cuidado pueden ayudar con ser el "lazo de unión" que los guía a través del laberinto de la atención médica. También pueden apoyar las metas de salud y bienestar de una persona. Como participante en el cuidado de alguien que recibe diálisis, usted puede mejorarle la salud y bienestar de varias formas. Puede ayudar a su ser querido a comprender mejor la enfermedad. También puede apoyar a su ser querido siendo una parte activa del equipo de atención médica. Una forma de hacer esto es ayudar al paciente a elaborar las preguntas que necesita hacer al médico y al equipo encargado de la diálisis. También puede preguntarle al equipo encargado cómo puede ayudar a su ser querido a cumplir con el plan de atención. Acompañe a su ser querido a las citas médicas, fomente la asistencia a las reuniones para el plan de diálisis y ofrezca tomar notas. Todo su esfuerzo y apoyo puede ayudar al paciente a vivir una vida más sana y feliz. También es importante no olvidar que usted debe cuidarse. Ser un participante en el cuidado a veces puede ser muy demandante, especialmente si trabaja tiempo completo o tiene que encargarse de otros familiares. Como dice Megan en la página 18, pida ayuda cuando la necesite. ¡Los participantes en el cuidado también necesitan atención! Este artículo fue proporcionado por NCC. 1979 Marcus Avenue, Suite 105 · Lake Success, NY 11042-1072 Phone: 516-209-5253 · Fax: 516-326-7805 · ncc@ncc.esrd.net www.esrdncc.org · www.kcercoalition.com Página 26 NetLink Noviembre 2015 Megan: no está sola Megan se casó con Roy en el 2009. Roy había tenido hipertensión arterial durante años, pero tomaba sus medicamentos. Era un atleta que cuidaba de su cuerpo. Todo esto cambió después del primer cumpleaños de su hija en el 2011. Roy se enfermó e ingresó en un hospital. Le diagnosticaron pancreatitis. Las pruebas mostraban que sus riñones habían dejado de trabajar. Roy empezó con diálisis peritoneal y lo pusieron en la lista de espera para trasplantes. Estaba estable, pero aún muy enfermo. Tanto Roy como Megan descubrieron que era muy estresante manejar el estado médico de Roy a la vez que continuaban cuidando a su familia. "Me mantenía preocupada todo el tiempo y sentía como que estaba siendo su mamá al igual que con nuestros hijos", dijo Megan. "Estábamos tratando de [proteger] a los niños para que no supieran lo enfermo que se encontraba. [Yo sabía] que él iba a estar bien, pero aun así sentía una gran pérdida", dijo ella. "En las buenas o en las malas, en salud y en enfermedad, sucedió un poco más rápido de lo que esperábamos". Megan es una trabajadora social. Descubrió que su preparación la ayudó a encontrar una forma como Roy y ella podían ser respetuosos con las necesidades del otro. También la ayudó a ver perspectivas distintas y a dejar saber a otros cuando necesitaba apoyo. Después de un año y medio en tratamiento de diálisis, Roy recibió un trasplante de donante vivo del cuñado de Megan. Megan se siente agradecida con el apoyo que recibió su familia durante el proceso del trasplante. También desea compartir con otros participantes en el cuidado que es importante cuidarse uno mismo al igual que al ser querido. "Hay que pedir ayuda si uno la necesita", dice ella. "Trate de identificar a alguien que pueda ser un apoyo sólido en los días difíciles. Por cada persona que tiene diálisis, hay alguien que está apoyándole y [esa persona] también necesita atención". Esta publicación se desarrolló bajo el Contrato número HHSM-500-2013-NW002C, con el título "Centro de Coordinación Nacional de la Insuficiencia Renal en Etapa Terminal (ESRD NCC, en inglés)”, patrocinado por los Centros para Servicios de Medicare y Medicaid (Centers for Medicare & Medicaid Services, CMS), Departamento de Salud y Servicios Humanos. El contenido presentado no necesariamente refleja la política de CMS.